Ninjas Fighting Lymphedema Foundation
Great doctors are everywhere. We're blessed to have some of the best medical care available in the world. But, finding a physician who is familiar with Lymphedema let alone up to date on care and treatment can be a challenge.
We started Ninjas Fighting Lymphedema Foundation to increase the odds of Lymphedema fighters finding a doctor who can help. To that end, we make new studies and research available here on the site to support conversations with you physician. Those resources are there to help them understand, it's not a weight issue and it's not all in your head.
We are also building a directory of physicians who understand Lymphedema and are ready to help you find answers. If you know of a doctor who has been helpful, or who is willing to learn more, please use the form below to send us their information. We would love to bring them into the Ninja Nation.
Joseph Dayan, MD
David W. Chang, MD
University of Chicago
Kyle XU, MD
Roman Skoracki, MD
Ohio State University
Thomas Wright, MD
Jay Granzow, MD
Ketan Patel, MD
Edward Chang, MD
MD Anderson Cancer Center
Mathew Hanasono, MD
Mark V Schaverien, MD
MD Anderson Cancer Center
Alexander T. Nguyen, MD
You Are Not Alone
It may feel like you’re fighting your battle with Lymphedema entirely alone. And it is a fight. Doctors may not see the symptoms and insurance companies act like it’s not an issue. Family and friends, even those who love you, can struggle to help. We hear it enough to know that many with Lymphedema feel isolated and misunderstood.
Nothing could be further from the truth. You are not alone. You are part of a family that you may have never met, but who has your back in this fight and can’t wait to join forces. We launched Ninjas Fighting Lymphedema Foundation so no one would face it alone.
You see, we know something that may surprise you. People with Lymphedema are some of the toughest, most resilient individuals on the planet. They deal with issues that some doctors don’t even recognize and do it with dignity and strength that would make Olympians blush.
We see you. We’ve been there ourselves, and we know that there is hope. There are resources available to fill the gaps insurance won’t cover. Lymphedema communities are springing up where we no longer hide but stand up and reclaim their lives and everything fear wanted to steal. At NFLF we have pioneered ways to make your condition easier to manage and make life start to feel like living again. Things can get better.
We are just getting started, and we’re looking for someone like you to join us. You are not alone, you are one of us, and we can’t wait to meet you.
Get In Touch